Showing posts with label health. Show all posts
Showing posts with label health. Show all posts

Saturday, February 1, 2014

Sleep Study Results are In....

This has been a journey in of itself. 
Starting late last Spring/early Summer. 
We were looking into some oral therapy for one of our kiddos.  Mild speech issues no one has been able to figure out a cause for, but as this child has matured learning to compensate and overcome.  As we were setting up an evaluation it was suggested we have the whole family evaluated.  Often issues are congenital and multiple family members have issues.  The therapy cause correct issues before they become issues later in life.  Worth looking into.
What we weren't expecting was concern regarding another child's palate.  We were aware of the issues, but no one had suggested anything else.  The quirks in his behavior we dealt with, thinking it was just the way this child was created.  Such as this child doesn't like to sleep in bed, always sleeps in recliner and/or couch.  Frankly, I don't care where my children sleep as long as they sleep these days.  Life is busy and some things I just don't have the energy to argue about.  Even if this child starts in bed, always ends up on the couch, either due to sleep walking or just waking up and wandering there after a bathroom trip. 


Next stop was the doctor to check adenoids and tonsils.  Nothing remarkable, so a sleep study was requested.  We were put on a wait list and I received a call just before Christmas for after New Years.  After our initial appointment, the PA agreed our kiddo was borderline and would benefit for a sleep study to either confirm/diagnose an issue or it was behavioral and we would decide what to do regarding behaviors. 
Best part was there was a cancellation and we were asked if we could return later in the week for the sleep study. As we hadn't been able to restart school, I said sure. 
I wish I could post pictures of all the wires.  While I was allowed to take pictures for Dad I was forbidden to share them with anyone else including siblings.  Which is why I also am being very careful to not suggest which child went with me to KC to the Children's hospital.  While there is noting to embarrassed about, I am trying to respect wishes here.  So if you do know who I am speaking of please, request my child's desire for privacy.  I am posting results only because so many have been praying and asking. 


So the results:
Airway is clear! No apnea!  No issues with orthodontics that need to be done. Wahoo!!
Diagnosis:  Periodic Limb Movement Disorder which causes brain arousal during sleep and causes low levels of dopamine in the brain. 
In our case, the disorder is being caused by iron deficiency.  Which also means there is a ferritin deficiency.  Since this child is a carnivore I asked what could be lacking in the diet to prevent iron absorption.  Vitamin C.  Said child does not care for produce!!  Lesson is being learned that Mom's balanced meals are meant to allow for maximum nutrition.  Each food is reliant on another food for maximum nutrition and health.  While this child consumes produce, it is not varied enough.  Understanding that athletic performance and overall feeling well and happy is dependent on diet, there is a willingness to try and eat more variety, albeit reluctantly.  We will need occasional blood tests as a result of the iron supplements, but in time we should hopefully be able to discontinue the supplements and just eat healthy!  Praising the Lord! 
We also discovered the child is lingering too long deep 3 sleep.  An indicator of not getting enough sleep on a regular basis.  Wiggling around in bed, procrastinating, asking all those late night questions.  You get the idea, all the stuff that drives a parent nuts when they just want their children TO GO TO BED!!! 
Well now, the child has heard it all from the doc!  Sleep and eat your veggies!! Amazing how much more validity there is to the mantra when it isn't the parent saying it!!

Monday, March 11, 2013

Scared and Sleepless

I went on a retreat this last weekend.
I don't remember when my head started hurting.  Before the retreat. 
Late Sunday night I just "couldn't" anymore.  Left the tv remote with the girls and went to bed.
I cried, and the pain worsened.
Fun Girl found me...
She tried to call her dad. He was at a hockey game with the boys.  Unsuccessful, she called our friend Dara. 
They tried to boss me out of bed...to another room where I wouldn't hear water running.  The goal was to get me in a warm bath to help me relax and see if that would help.
Earlier in the day, Fun Girl and I were cruising through my essential oil book, she grabbed it and started reading. 
Not too long after, my room was scented with the oils of frankencense, lavender, mint, "Stress Away", lemon, "Peace and Calming".
She was rubbing oils on my feet. 
I would like to say that was the cure all. 
I felt loved and cared for.  I felt guilty that my daughter was feeling so desperate and I was the cause.  I was soothed by the scent of the oils. 
Hubby was home soon after.  He was on the phone with the doctor, in spite of my protests.
Ice packs were suggested. 
And they worked.
They worked to the point I could sleep.
Late Sunday morning/early afternoon I woke.
My speech was a mess.
My leg was...well I don't know how to describe it...it just gets slightly heavier and less like my own leg.  Doesn't work or feel quite like my real leg is suppose to and yet it is my leg.

sigh

The headaches came back.  Not as severe.  But back nonetheless.
The hubs says he is coming home early from work to push for an appointment with the doctor.  Says he is going to push for hospitalization or something.  It has been 3 months.  And we have no concrete answers. Healing from a concussion can take 2 years.  Headaches might come and go for years.  No appointments with specialists that could possibly do anything or know anything.

I have hung up my car keys.  My vision is wacky.  My speech is hit and miss.
I have trouble following busy conversations... I even had trouble following the speaker during our retreat. 

We have no answers. 

And for the first time in my life, I don't know what questions to ask.
There are quite a few that have told me they think this is stress related.

Yet the whole situation is stressful.

I haven't blogged, because I have no answers. 

I don't know how to explain this state of being. My broken speech.  If I have time to form my words in my head before I speak, I can for the most part speak correctly.  My search for words.  My frustration.  I sometimes catch myself wondering if this is what my mom feels like with Alzheimer's or any of the other people I have met and seen as they struggle to communicate. 

I think through what I am going to do before I do it.  Sometimes I freeze in place to plan how to move....a curb will cause me to stop and ponder the process of stepping down.  The fear that takes over, that I will fall and hurt my head further. 

My eyes are sometimes slower to focus.  The world takes on an iridescent 3D appearance at times.  It just shimmers and moves and yet I know it is suppose to be stationary.  I stop and wait till I can bring it into focus and hopefully, the world stops moving quite so quickly and lets me catch up. 

In all honesty, I don't know how to pray.....
Praying for healing would be the practical request. 
Yet my practical side recognizes, God's plan might be a different path.
So I sit in silence and wait.  Wait and rest.  Try to learn what He might teach me in my silence.
And sometimes I cry.
Sometimes, I get glimpses in the changes He is doing....
*brothers who fight less and learn to work things out a bit better...just so mom isn't stressed or overwhelmed by the loudness
*maturity and a stronger work ethics being developed
*new skills learned
*less busy mom means more one on one time
*new growths in relationships
*new relationships
*seeing the heart of a prayer warrior develope in The Man

I find myself in the quiet of the night wondering, praying, alone in my head......
Maybe tomorrow I will be better....

Monday, January 14, 2013

An update...

It is late...
My mind is a whirling.
Fun Girl, "don't want to be a pest...but you haven't updated your blog in a while."
Me, "I don't know what to write.  Life is tough right now.  I cry a lot"
I just viewed my last post posted.
It was the afternoon before the car accident.
Life was great that day.  Blogging and computer stuff done.  Kiddo at a Christmas party, looking to what all needed to be done for the holidays.  On our way to work Bingo to pay for Hockey Player's hockey and life came to a halting stop at the red light. 

We were stopped.  The kid admitted to being distracted.  He stopped only after crashing into us.  Things could have been so much worse.  That they weren't I am grateful.  I was stunned, dazed and, well, just going with the flow.  I didn't feel right but stayed quiet.  We went on to Bingo.  My leg went numb, got heavy and eventually I sat down and helped with paper work.  The next morning, I was dizzy and weak... Eventually I was in the ER.  A concussion. 

A week later in the ER again.  Post-concussive syndrome. 

It is not good to sit in the car sideways.  I was sitting at an angle so I could face Hubby while he drove and we talked.  Instead of a front to back concussion, I was hit from the side.  Bummer.  Brain doesn't like that too much.  I slept a lot for the 2 weeks after the accident.  There is a lot I don't remember from about Thanksgiving till now.  Pictures help.  Talking helps.  Sometimes looking at the calendar.  But for the most part, the memories are mostly gone.  But I know my kiddos have been gems.  They have loved on me and taken care of me. 

A week after the accident, the call came.  Granny was gone.  There was to be no services or viewing.  She was gone.  I slept a lot.  The kids and I still have yet to fully process she is gone.  It is just a big silence in our life.  None of us really know how to talk about it. 

In the meantime, my mom is declining in leaps.  Agitated and confused.  She doesn't always recognize us, or she does and doesn't know why we are familiar. The year ends and a new one begins.  We find ourselves saying good-bye and grieving.  Mom will be moving soon.  She wanders now and doesn't know us a good amount of the time.  They will move to Colorado, there are more siblings/kids there to help out and support.  More than just me.  Colorado is home to my parents.  Where they want to be.  I know with this move, we are saying good-bye.  Visits will be farther and fewer.  Her memories of us will slip faster with our absence.

And I sleep a lot.  I have aggravated my concussion a couple of times.  I can't be silly and shake my head at the kids.  It hurts.  Accupuncture helps a lot with the pain.  But it is not long lasting.  More follow up with the doctors to happen.  Hoping for the doctor okay to travel to Colorado with my mom.  There is a concern about the change in altitude and pressure on my brain.  I have an extra motivation in going...I want to see my preggy niece.  My first grand-neice on my side of the family.  I love being an auntie and look forward to changing my title to GREAT Aunt!  She is due soon.  I can't remember the due date.  If it wouldn't be too soon, it would be cool if she popped out to see me while in Colorado.  Wouldn't that be lovely....snuggles with a super sweet wee new born.  Ahhh!
I keep telling Hubby I need a baby girl of my own.  The kids think my concussion is even worse than the doctors have said.

School planning needs to be done.  Hoping between naps and appointments this week, I will accomplish this one GREAT BIG task. 

Thursday, October 11, 2012

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Wednesday, October 10, 2012

It starts with a drip...then a sneeze

It all starts here, hopefully not at the shirt sleeves.
But if they start with shirt sleeves, they are quickly directed to here.
 
 
Inevitablely, they end up here.  Normally in front of the tv during the day.
Sleeping here, at night, to be close to mommy and daddy.
 
 
And if they are truly going to be sick.
It will be at 3 am
because kids are never sick during the day.
That would interfere with play and fun.
It must be at night only. 
When a mother and father desperately need their sleep.
If the cold requires this at 3 am.....
 
 
You can be sure mom and dad call the doc in the morning.
Mom and dad need sleep to play and have fun during the day.
Not sure why kids don't need sleep for that.
Doc will do Xrays.
Doc will diagnose pneumonia in "THE MAN"
He won't hesitate.
He won't hint.
He won't say it is patchy.
He says it is pneumonia.
He looks at The Man sadly.
Cause mom dropped the ball this time.
At 3 in the morning, Mom was too sleep deprived and missed the signs of distress.
But all is good now.
Antiobiotics.
Steroids.
Breathing treatments around the clock.
 
 
And today he is playing! 
And Dad and Mom are tired.
Dad sleeps on the couch for now.
Mom types. 
Naps are soon to come.

Sunday, September 30, 2012

Life Requires a Sense of Humor....

Fortunately for Fun Girl, she wasn't home.
My allergies are bad.  Ragweed is my nemesis this time of year.
Mostly my eyes are affected.
I step outside and they swell and water.
They itch.
They get tired. 
I spend a lot of time like this.
Cold Compresses to reduce the Swelling.
Often, I doze off for a while as well.
 
 
 
So when I needed to show the Dad what needed to be done in the yard/garden,
I had to take serious steps.
I refused to shower first....
cause the shower would remove all the gunk from my being that makes me sneeze and wheeze.
But what about my eyes?
My sunglasses weren't going to be enough.
So in my jammies, I ventured out.
Then I heard giggles and my IPhone.
Iphone in the hands of Hockey Player.
He is no longer my sweet quiet child.
He is onery, squirrely and obnoxious.
I turned my back and laughed.
Dad reminded me it was his birthday.
So I turned around and smiled.
How cool is that!! 
I told him that would be his birthday present.
 
 
And since you can't tell in the above photo, we had to take one of the feet.
mismatched flip flops.
 
 
Fun Girl's response:  "I Can't Believe you Went Outside!"
WHat will the Neighbors THinK.
UmmMMM We have OnLY LivEd hErE for 17 YeArS.
I think they have seen it all from us.
 
Then I told her, I would blog it.
Her response,
"If you want to embarrass yourself that way!"
I love my FUN GIRL and HOCKEY PLAYER
 

Sunday, March 25, 2012

Health Insurance motivators to be healthy!

So our health insurance is looking out for their bottom line, I realize that.
They do have some power motivating tools out there though to get their patrons healthy.
For instance, I just completed an assessment and 3 "counseling" sessions online. 
What do I get out of these services...
Well I will receive $50 to apply to future medical expenses.  That is the equivalent to two office co-pays.  With my crew, that won't be hard to use up. LOL.  But hey, every little bit helps. 

But on the other hand, I have been frustrated with the lack of free time around here for just "me time". 
I mean, seriously, "ME time",  I might get 2 minutes in the car while I wait for a child to come out to the car.  I might get to go to the bathroom uninterrupted.  If I start to clean, well, I might get to be alone as the kids try to slip off and escape my notice.  When I had to list how much time I spend on the computer.  I didn't want to admit it.  I am not using the computer solely for recreation.  Lately, I have been listing a lot of items on Ebay.  Trying to get as much done before we start school back up.
Therefore, I am sitting and typing.  But as I have these encouraging comments and suggestions rolling through my head, I did some math. 
I have 15 stairs between the mainfloor and the basement.  If I have to run downstairs to weigh every auction, I can increase my activity.  If I do 20 auctions in a day, that is like 300 stairs.  Not bad.  Best part, and Dara you will like this, I don't get all sweaty.  I can't stand to get sweaty!  My hair wilts.  I feel slimy and gross.  If I get sweaty, then I have to shower and get ready for the day all over again.  That is more time away from the things I gotta do....
So I will run up and down the stairs for every auction.  I won't ask my kids to do it for me.  Cause, I need to get up and get moving some more.